23 May 2017

Raising the profile of children’s hospice care

Rennie Grove Hospice Care is joining with other hospice care providers in the UK to raise the profile of children’s palliative care during Children’s Hospice Week from 22 – 28 May. 

Together for Short Lives is the umbrella body for children’s hospice care in the UK and this year is encouraging people to ‘turn up the volume’ on children’s palliative care to raise awareness about the number and needs of children with life-limiting conditions and to celebrate all the lifeline services on which children and families rely. 

Rennie Grove has been caring for children with life-limiting conditions for nearly 25one of the children being cared for by Rennie Grove's children's nurses years, providing specialist nursing care on a 24/7 basis and crucial respite care and emotional support for all the family. The charity’s specialist children’s nurses work with the family and other healthcare providers to create a personalised care plan for each child.  This enables the patient and their family to balance quality of life with risk; to administer the necessary pain relief as soon as it is needed and to avoid unnecessary and distressing hospital admissions. Their input means that children can remain at home, where they feel safe and comfortable, surrounded by their loved ones.  

The charity currently cares for 65 children in Bucks and Herts, many of whom are living with progressive, congenital diseases that affect their life expectancy but which may require specialist support for their whole childhood. Its Family Support team is also helping several siblings or bereaved children at any one time through counselling, play sessions and support groups.  

Find out more about Rennie Grove’s children’s nursing service from one of the team at: www.renniegrove.org/terry and hear how it supports children through bereavement at www.renniegrove.org/karen   

Join the conversation on social media using #UpTheVolume and #ChildrensHospiceWeek and follow Rennie Grove on Twitter @renniegrove or like them on Facebook @renniegrovehospicecare to get involved.