For families caring for a young one with a life-limiting condition, the physical and emotional challenges can be bewildering and overwhelming. But Rennie Grove Hospice Care’s team of dedicated children’s nurses help shoulder the burden and – literally – ease the pain.
Our specialist nurses are available 24/7 for local babies, children and young people up to the age of 19 and their families. Daily, across Bucks and Herts, they visit families and patients in homes, schools and hospitals to shape care tailored to each of their needs. The aim is to ensure that each young patient is able to fulfil their potential and enjoy the best quality of life possible, however short that life may be.
Tina Bodell is one of our Children’s Hospice at Home Service nurses, and in a piece on this website that details one of her working days, she said: “As well as providing clinical support to our children, we try to provide holistic care to the whole family too. This might include acting as the link between all health and social care professionals involved in their child’s care; making sure parents’, siblings’ and carers’ needs are looked after and working alongside them to deliver care to their child.”
The range of complex conditions and tasks tackled by our children’s nurses is vast, and an extract from Tina’s website story gives an example of a visit to patient who has been newly-diagnosed and referred to the Children’s Service:
‘The new patient is Joe. He has a tumour in his kidney and his family needs help with managing his symptoms.
‘Once introductions have been made Tina starts the meeting with an explanation about Rennie Grove and the work that its children’s nurses can offer Joe and his family. These include care that is tailored to Joe’s condition, medical support, pain management, help with administering medication and an on-call service that families have access to 24/7. Tina explains that they will work closely with the children’s community nurses and the local hospice to make sure that Joe and his family get the help that they need to care for Joe at home.’
“Our families trust us completely as highly skilled clinicians who know all about the complex needs of their child,” said Tina. “They feel reassured that they have access to a member of the team at any time of the day or night. This is crucial when you are caring for a very sick child at home.”
You can read ‘A day in the life of a Rennie Grove children’s nurse’ at www.renniegrove.org/childrensnurse and to find out more about our services and how you can support the charity please visit www.renniegrove.org.