Our Annual Conference

Every year we hold a one-day conference addressing some of the most important and topical issues for professionals working in palliative care.

Our aim is to provide an educational forum for our own nurses and clinicians as well as our partners in community and palliative care.

We keep delegate rates as competitive as possible because we know your organisations have limited budgets for education.

With a consistently high standard of speakers and a wide range of relevant topics for discussion, our conference has grown in popularity and now attracts around 150 healthcare professionals from all across the UK.

2019 Conference - 'Complexities in Palliative Care'

​Wednesday 16 October, Shendish Manor Hotel

Specialist palliative care should be available for all patients with complex needs, but the nature of ‘complexity’ is not well defined. The scope of palliative care has broadened in recent years to include supportive care from the point of diagnosis of any life-limiting illness to end of life. Simultaneously, there is a growing population of patients with chronic, long- term, multi-morbid conditions who may require specialist palliative care. 

Join us on Wednesday 16 October to hear the thoughts of our speakers on ways to overcome the challenges faced by patients who have a range of health conditions and receive care from a number of health and social care providers.
This year's conference will take place at the Shendish Manor Hotel in Apsley, Hemel Hempstead. 

Programme for the day

8.45 Registration and coffee
9.30 Professor Stephen Spiro - Chair, Rennie Grove Hospice Care 
and conference chair Welcome and introduction 
9.45 Iain MacBeath - Director of Adult Care Services, Hertfordshire County Council 
Keynote speech – Changes in modern healthcare 
10.15 Dr Fiona Lisney - Consultant in Palliative Medicine, Frimley Health NHS Foundation Trust 
Identifying patients at risk of dying and models of practice to address this 
11.00 Coffee
11.30 Lauren Berry - Lead Nurse Supportive and Palliative Care, Lead for Chaplaincy and Interim Lead for Patient Experience, Royal Brompton and Harefield NHS Foundation Trust with Linda Freeman - Team Leader and Senior CNS of Supportive Palliative Care Team Enhanced supportive care in non-malignant disease
12.15 Louise Jenkins - Strategic Liaison Nurse for Secondary and Tertiary Services in Hertfordshire, Hertfordshire County Council End of life care for patients with learning disabilities
13.00 Lunch
14.00 Dr Emily Harrop - Consultant in Paediatric Palliative Care and Lead Doctor, Helen & Douglas House, Honorary Consultant, Oxford University Hospitals NHS Trust  
Transition – Child to adult
14.45 Georgina Constantinou - Institute for Health Research, University of Bedfordshire
Children's unmet palliative care needs: a scoping review of parents' perspectives
15.30 Alison Seren - Bucks CCG & Suzanne Adawallah
Developments in use of CHC fast track funding to meet end of life needs
16.15 Close of Conference and tea


Professor Stephen Spiro

Professor Stephen Spiro Stephen is Chair of Trustees at Rennie Grove Hospice Care. He is a Professor of Respiratory Medicine having held consultant posts at The Royal Brompton Hospital and University College London Hospitals. He is a former President of the European Respiratory Society and the British Thoracic Society and was Editor of Thorax between 1991-1997. In 2014 Stephen was awarded the British Thoracic Society’s Gold Medal for outstanding contributions to UK Medicine. He has published over 200 peer review articles and has edited seven text books including four editions of Clinical Respiratory Medicine. 

Iain MacBeath 

Iain MacBeath is Director of Adult Care Services for Hertfordshire County Council. He has responsibility for adult social care, integration with NHS services and adult learning. Iain began his career as a civil servant for the former Benefits Agency. He then worked for Social Services in his home town of Barnsley in both children’s and adult’s services. After moving to Hertfordshire in 1999, he spent five years working for the Probation Service, returned to Social Services for the London Borough of Barnet and became Assistant Director of Adult Care Services for Hertfordshire in 2008 and Director in 2013.
Iain is a Trustee of the National Association of Directors of Adult Social Services as Honorary Treasurer and is Lead Director for Sector Led Improvement in the eastern region branch.  
He has served as a governor for West Herts College and volunteers with the Samaritans. 

Fiona Lisney 

Fiona has been a Consultant in Palliative Medicine in East Berkshire for 13 years. 
She is the clinical lead for the supportive and palliative care multi-disciplinary team (MDT) 
at Wexham Park Hospital, a service that receives over 2,000 referrals a year.
Fiona is also a medical examiner, the hospital’s service improvement lead for end of life care and the chair of the day therapy MDT at Thames Hospice in Windsor.   
She has a particular interest in neuro-degenerative disease and chairs the East Berkshire 
neuro-degenerative disease MDT.

Lauren Berry 

Lauren is currently the end of life lead and patient and public engagement lead at Royal Brompton and Harefield NHS Foundation Trust. She previously led the specialist palliative care team within the Trust. This year Lauren completed a leadership fellowship, developing palliative care involvement with interstitial lung disease patients. 
Lauren has 15 years’ experience of working in a variety of palliative care backgrounds, with a special interest in developing services for patients with a non-cancer heart and lung diagnosis, by identifying unmet need and working with uncertainty of prognosis. 

Louise Jenkins

Louise is a Strategic Liaison Nurse for secondary and tertiary services in Hertfordshire.  
She has been a qualified learning disability nurse for 22 years and, as senior nurse in the community learning disability nursing service, she supports nurses to address health  inequalities and reduce the risks of premature death for people with learning disabilities.
Louise has developed a keen interest in end of life care and is involved in several joint 
projects to blend the worlds of palliative care and learning disability nursing. 

Emily Harrop 

Emily has been a Consultant in Paediatric Palliative Care at Helen & Douglas House Hospices since 2010, and is now Interim Medical Director. She is also an honorary Consultant at Oxford University Hospitals NHS Trust. She undertook her specialist training at Great Ormond Street Hospital (including a post graduate diploma in Palliative Medicine); before this she completed a PhD in Neuroscience (Infant Pain) as well as some postgraduate training in Paediatric Clinical Pharmacology. Her other roles include Secretary of the Association of Paediatric Palliative Medicine executive committee and joint Chair of the Thames Valley Paediatric Palliative 
Care Network. Emily also recently acted as the Deputy Chair of the NICE Clinical Guideline Development Group for End of Life Care in Babies, Children & Young People (NG61) and contributed to the associated Quality Standards (QS160). 

Jenny Manfrinati 

Jenny started her career as a clinical psychologist working with neuropsychological issues due to brain trauma. Later, she moved to the USA and continued her professional development working as a cross-cultural counsellor and academic advisor at the University of Minnesota. Jenny’s areas of specialisms are complex post-traumatic stress disorder and chronic distress.

Representative from the Continuing Healthcare Team, Buckinghamshire Clinical Commissioning Group/Oxford Health Foundation Trust

NHS Continuing Healthcare is a package of services that are arranged and funded by the NHS for people outside hospital with ongoing health needs. Continuing healthcare can be delivered in any setting, including in the patient’s home or in a care home. For patients with a condition that is getting rapidly worse and who are close to the end of life there is a fast track system for getting continuing 
healthcare funding.

2019 Conference sponsor


2018 Conference - 'Elderly, Frailty and Dementia: Whose Responsibility?' 

Thank you to everyone who attended our Annual Conference on 17 October 2018 at The Holiday Inn, in Weston Turville.

Delegates enjoyed a packed and thought-provoking schedule. Read the full report from the day here

You can see the following presentations here:

Professor Malcolm Johnson
Dr Karen Harrison Dening
Sarah Burnard
Dr Caroline Nicholson 

2017 Conference - 'Loss, Grief and Bereavement'

This years conference, took place at the Clare Foundation in Saunderton, focusing on the theme ofconference 17 'Loss, Grief and Bereavement'. Colleagues from a variety of different organisations supporting people through bereavement came together for a day of learning and discussion around the issues faced by those who have experienced the death of a friend or family member. 

You can read a full report on the conference here.

2016 Conference

The conference took place at Pendley Manor in Tring. Over a hundred professionals from hospitals, hospices and community settings attended the day’s proceedings. The conference was chaired by Marie Cooper, Practice Development Lead at Hospice UK"Achieving individualised care through collaboration and partnerships – the way forward in the palliative and end-of-life community" 

Read the full report from our 2016 conference

Previous Conferences

2015 Conference - "Quality at End of Life - breaking down the barriers"
With the UK recently being ranked top in the world in the Quality of Death Index and the issue of a report in May 2015 by the Parliamentary Health Ombudsman ​showing that too many people are still being failed by end of life care, the Conference explored issues surrounding the need for quality care at the end of life.  Our keynote speaker was Simon Chapman, Director of Policy, Intelligence and Public Affairs at The National Council for Palliative Care and the Dying Matters Coalition.

Read the full report from our 2015 Conference.

2014 Conference - "Living with Dying - valuing life, not waiting to die"

The Conference welcomed guest speakers including Professor Karol Sikora, Dr Ana Draper and Dr Russell Moule. 

2013 Conference - 'The Changing Landscape of Palliative Care – learning from practice’

Over 120 delegates heard from experts in palliative care such as keynote speaker Dr Geoff Joliffe and Professor Rob George.

Read the report from the 2013 conference.

2012 Conference - ‘Palliative Care for the Long Term’

We were honoured to welcome leading specialists such as Professor Malcolm Johnson and Dr Max Watson to our 2012 Conference. Read the report from the 2012 conference.